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What is Endometriosis?

Endometriosis is a chronic and often debilitating condition affecting around 1.5 million people in the UK.

It occurs where tissue similar to the lining of the womb grows elsewhere in the body, including the ovaries, fallopian tubes and surrounding organs. This can cause:

  • Severe, persistent pelvic pain
  • Fatigue and exhaustion
  • Pain during everyday activities
  • Digestive and bladder symptoms
  • Fertility difficulties

Unlike many short-term conditions, endometriosis is typically long-term, unpredictable, and progressive, with symptoms that can vary significantly from day to day.

It is also widely recognised as an “invisible condition”, meaning individuals may appear outwardly well while experiencing significant pain and limitations.

The Reality of Living and Working with Endometriosis

One of the most difficult aspects of Endometriosis is not just the condition itself—but the lack of understanding surrounding it. Many individuals face:

  • Delays in diagnosis, often for several years
  • Difficulty obtaining medical recognition or support
  • Pressure to continue working through significant pain
  • Misconceptions that symptoms are exaggerated or not serious

In the workplace, this lack of understanding can translate into unfair treatment, unrealistic expectations, and avoidable conflict.

Is Endometriosis a Disability in the UK?

Endometriosis is not automatically classed as a disability under the Equality Act 2010. However, it can meet the legal definition where:

It has a substantial and long-term adverse effect on your ability to carry out normal day-to-day activities.

In practice, many people with endometriosis may qualify where:

  • Pain or fatigue significantly limits daily activities
  • Symptoms are ongoing or recurring over a long period
  • The condition affects the ability to work consistently

The law recognises that conditions do not need to be constant –fluctuating or episodic conditions can still be disabilities if their overall impact is substantial.

Possible symptoms

    • Stomach and back pain
    • Bloating
    • Digestive and bowel malfunctions
    • Chronic fatigue
    • Weight management difficulties
    • Inflammation
    • Pain when going to the toilet during the menstrual cycle
    • Painful intercourse
    • Pain during ovulation
    • Problems conceiving
    • Heavy periods
    • The symptoms of Endometriosis are largely unseen.

 

Endometriosis reasonable adjustments:

  • Allowing time off for medical appointments
  • Change of working hours
  • Dispensation for absences related to the condition
  • Access to counselling
  • Occupational Health assessment
  • Reduced workload

How Endometriosis Can Affect You at Work

Endometriosis often impacts work in ways that are distinct from other conditions, particularly due to chronic pain and fatigue. Common workplace difficulties include:

  • Managing sudden flare-ups of severe pain during working hours
  • Difficulty sitting, standing or commuting for long periods
  • Repeated absences linked to symptoms, treatment or surgery
  • Reduced stamina due to chronic fatigue or medication
  • Struggling to meet rigid schedules or full-time hours

Because symptoms are not always visible, employees may find themselves:

  • Being questioned about the legitimacy of their condition
  • Pressured to “push through” pain
  • Treated as unreliable or underperforming

This can create a deeply stressful working environment and, in some cases, lead to resignation.

When to tell Your Employer about your Endometriosis

Many people are able to work despite their condition and have successful and rewarding careers. The extent of the condition can determine whether or not it is formally a disability. The Equality Act 2010 defines disability as “a physical or mental impairment which has an effect on a person’s ability to carry out normal day-to-day activities.” This could include ‘hidden’ impairments or disabilities and the effect must be “substantial, adverse and long-term.” It is arguable that Endometriosis could constitute a disability.

Legally, employees with disabilities should not be treated less favourably than non disabled persons. This may mean giving allowances for time off, providing light duties during episodes of pain and adjustments to their workload. If a person is treated less favourably and/or an employer fails to put into place ‘reasonable adjustments’ individuals may be able to present claims of discrimination.

To assist the employer in understanding your condition and the additional support they could provide, it is important that an assessment is undertaken to provide feedback, assistance and recommendations for adjustments. If this is to take place, you therefore need to ensure that your employer has sufficient knowledge of the condition so that they can offer support or undertake any necessary Occupational Health assessments.

Any recommendations provided should be implemented as quickly as possible, where reasonable to avoid any further detriment.

Employer Responsibilities

Where an employer knows or ought reasonably to know, that an employee has Endometriosis which may amount to a disability, they have a duty to consider reasonable adjustments. These may include:

  • Flexible working hours or adjusted start/finish times
  • Time off during flare-ups without penalty
  • Temporary reduction in workload
  • Home working options
  • Adjustments following surgery or treatment
  • A more flexible approach to absence management

Employers should also take care to ensure that policies, particularly around attendance and performance -do not unfairly disadvantage employees with chronic conditions.

A failure to act reasonably may amount to unlawful disability discrimination.

 

Common Workplace Issues and Legal Claims

We regularly advise on situations where Endometriosis has been misunderstood or mishandled. Common issues include:

Disciplinary Action for Absence – Employees being penalised for time off linked to flare-ups, treatment or recovery from surgery.

Failure to Make Reasonable Adjustments – Where employers refuse or fail to implement practical support measures.

Discrimination Arising from Disability – For example, dismissal or warnings due to performance issues caused by pain or fatigue.

Indirect Sex Discrimination – Workplace policies that disproportionately affect women and those with menstrual health conditions.

Constructive Dismissal – Where ongoing lack of support or understanding forces an employee to resign.

Affected By Endometriosis

What Should You Do If You Are Affected?

If Endometriosis is affecting your work, it is important to take proactive steps:

  • Inform your employer where you feel able to do so
  • Seek medical evidence to support your position
  • Request reasonable adjustments
  • Keep a clear record of your symptoms and workplace impact
  • Seek legal advice if concerns arise

Many issues escalate unnecessarily due to lack of early advice. Addressing concerns early can often lead to a better outcome.


How We Can Help

At Lawson West, we recognise that Endometriosis is a serious, complex and often misunderstood condition, particularly in workplace settings.

We have extensive experience advising employees on:

  • Whether endometriosis meets the legal definition of a disability
  • Securing and negotiating reasonable adjustments
  • Challenging unfair treatment or disciplinary action
  • Navigating grievance procedures
  • Negotiating exits and settlement agreements
  • Bringing Employment Tribunal claims

We approach these cases with sensitivity, realism and a strong focus on achieving practical solutions.

 

Speak to an Employment Solicitor

If you are struggling at work due to Endometriosis, or facing disciplinary action, absence concerns or dismissal linked to your condition, you do not have to manage this alone.

Contact our employment law team today for confidential advice – Call us on 0116 212 1000

Or Make an enquiry online and we will respond promptly.

Supporting Awareness of Endometriosis at Work

Despite affecting so many people, Endometriosis is still widely misunderstood—particularly in professional environments.

Greater awareness leads to better support, fairer treatment, and improved outcomes for employees.

 You should not have to justify your condition or suffer in silence – legal protection may be available to you.

Kate Lea
Kate Lea

How Can Lawson West Help You?

Lawson West is recognised for providing a first class, national employment service. We’re listed and ranked in the Legal 500 for our exemplary team of professionals and the advice we provide.

If you want to see us face to face, we run four employment law walk-ins each week at our offices in Leicester and Market Harborough and this initial meeting with you is FREE of charge. We’ll look at your paperwork and advise on the best course of action. We can also meet with you digitally on Teams if you’re in another part of the country, in fact, we advise individuals on their employment legal needs right across the UK.

From settlement agreements, to redundancy, dismissal and disability and other types of employment dispute situation, we’re on hand to support and advise you. Please get in touch as soon as you can, as deadlines might apply.

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Knowledge About Endometriosis